“Luella’s room is done and we are thrilled!! SHE is thrilled!!
This fall has been a rough one for Luella. Luella has Dravet syndrome and an increase in seizures this fall with a major seizure on the tennis court resulting in a concussion and multiple stitches set her up for some difficult months. November and December were especially hard with seizures about every 5-6 days. She barely had time to recover from one seizure before she had another. Being selected for a Christmas Wish Grant from the Strong Brave Hopeful Foundation was an incredible gift and provided a much needed distraction for Luella and helped her get through a very rough time. Luella had wanted a bedroom makeover for some time. The grant allowed her to pick out some fun new accessories for a new bedroom. We even had her move into a larger bedroom in our house and she basically got to start from scratch with a new design! The SHB grant allowed her to pick just the right things to make her room truly hers and let her personality shine. Working with Luke and Amy was amazing and we are SO VERY GRATEFUL for them and their dedication to helping families who are facing struggles. This gift came at a much needed time for Luella and we can’t thank them enough!”
